Saving Shalev

Hello.  My name is Sivan and I am the mother of Shalev Boukovza, an amazing 6 year-boy who has SMA (spinal muscular atrophy), a very serious degenerative disease.

Shalev cannot walk and gets around using an old motorized wheelchair with a breathing machine.

He cannot sit unassisted, he does not walk, turn over or wash himself.  Shalev needs constant care and supervision 24 hours a day.

Up to now Shalev has been hospitalized numerous times with pneumonia, and his respiratory condition is poor.

Half a year ago a new drug, Spiranza, was introduced; it is approved by the FDA in the United States but has not been approved in Israel.

This drug costs NIS 350,000 for a single injection!

With the help of some good people we were able to get one injection! 
But we are unable to begin the treatment since Shalev requires SIX injections!

We, as Shalev’s family who are fighting for his life, ask you for your assistance, to help us save our son.

We would be extremely grateful for your donation.  Please choose the amount you wish to donate, or click on any sum you wish.

Thank you very much, with wishes for your good health.