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STXBP1 disorder mainly effects the nerves system.
Most of the children that have the disorder start having seizures from the first days of their lives and in the rest of their lives they suffer from development delay, motor difficulties, and would possibly never speak.
The kids that suffer from the syndrome depend entirely on the help of others in every activity and at all hours of the day.
The association "rare slime" was established in the purpose of promoting the reserch of finding a cure for the syndrome.
We, the students of kama class (promoting humanistic leadership) grade 8. De Shalit, decided to organize a social singing event in order to raise money that will help develop the cure for the children who are suffering from the syndrome.
Come and help us do something good!
You are invited to sing in harmony the song " lest us grow in peace" (Shlomy Shabat) by Ofir Shimony's musical production.
The event is produced in collaboration and help of the municipality of Rehovot at 18.6.18 at 19:00 at the gymnasium of "Amit" school (Lekhi street, Rehovot)
The cost for an entry ticket- 50 shekels (limited places number)
You can preorder the event shirt for a cost of- 40 shekels
The event will continue for about 4 hours (19:00-23:00)
The entry is restricted for age 6 and up, children below the age of 13 need an adult escort to come with them.
Any donation will be accepted and appreciated, also without buying an entry ticket
We hope to see you!
For further details:
Anat - 0525672567
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